Important Free Movie: Opioid Epidemic

Please come to the Harbor Theater on Friday, July 14th at 4 pm for a free screening of the movie, Dying in Vein. The movie will be followed by  a community discussion and Q&A with award-winning director Jenny Mackenzie, Police Chief Robert Hasch, and addiction/recovery experts.

Many people of all walks of life and income in the Boothbay region are suffering from addiction to opioids. This film addresses the causes, the ramifications, and treatment options.

Dying in Vein is a deeply personal exploration of opiate and heroin addiction through a cinéma vérité style that drops you directly into the lives of an addict in recovery, a couple trying to get clean, a family grieving the loss of their son and an Emergency Room Physician trying to save one patient at time. Through these stories, the film explores the contemporary belief of ‘living life pain free’ and the shame and blame that exists around addiction. The film looks at the impact of socioeconomic class on our broken treatment system, and how a group of emergency care physicians are working to save their patients from the opiate crisis.

From Academy Award Winning Producer Geralyn White Dreyfous

Still Room for Maine Maritime Trip on July 1!

REMINDER: Our second Enrichment Trip will be on Saturday, July 1 at 10am. “Into the Lantern: A Lighthouse Experience”. Maine Maritime Museum, Bath ME. Sign up or call The Community Center, 633-9876 to reserve your spot in the van.

For more information about this exhibit, read this article about the exhibit entitled “Into the Lantern: a Lighthouse Experience in the Coastal Journal.

 

FREE Climate Change Movie: Wed. May 24th

Join film-maker Andy Burt for a viewing and discussion about her film, Down to Earth. The movie features stories told by Maine climate activists of all ages–people who are working to slow down climate change–each in his or her own way. You’ll also hear from Andy about her Down to Earth Storytelling project and learn how you can contribute YOUR story.

Here’s an excerpt from Mary Gilbert’s movie review:

HOW DO PEOPLE BECOME ACTIVISTS? Are they born that way? ….

Andy Burt, a Quaker from Maine, has made a sensitive, well-planned, and beautifully edited one-hour film, Down to Earth: Climate Justice Stories (http://www.downtoearthstories.org/), in which she interviews a dozen or so earthcare activists about how they became involved in activism and what it means to them.

We see that it takes a certain type of courage to take on the role of “activist,” but the ordinary people in this movie have done it in a variety of ways and over their lifetimes. Some speak of important experiences of nature in childhood; their wish to protect the natural world has always been part of who they are. Some became activists later in life once they perceived the complexity of the world in a more informed way. For some, connections with others drew them in. Some simply had a feeling that “I must do this.” Once across the threshold, they all found an enhanced inner sense of meaning in their lives.

Join us at the Community Center at 6 pm on Wednesday, May 24th to watch and discuss this 1 hour movie.

Volunteers Wanted for Alzheimer’s Social Activity Group

On Friday, January 27, from 2:00 to 3:00 pm, at the Community Center learn how you can help local people with memory problems engage in social activities. Want to make a real, positive difference in the lives of neighbors and friends living with Alzheimer’s disease or a related dementia? Then consider joining the new Boothbay Area Social Engagement Committee. This committee of volunteers will plan and present one to two social activities for local persons diagnosed with dementia and their care partners in partnership with the Alzheimer’s Association, Maine Chapter and the Boothbay Region Health and Wellness Foundation.

Coastal Maine Botanical Gardens offers Therapeutic Horticulture Visits

Coastal Maine Botanical Gardens offers Therapeutic Horticulture Visits

You’ll make it possible for participants to enjoy guided nature walks, trips to the theater, museum tours and other meaningful social activities.

Learn more by attending the Boothbay Area Social Engagement Committee Training on Friday, January 27, from 2:00 to 3:00 pm, at the Boothbay Region Community Center, located at 185 Townsend Avenue in Boothbay Harbor.

To register, please contact Patricia Seybold of the Boothbay Region Health and Wellness Foundation at: pseybold@customers.com or 207-633-4368.

 

Early Stage Alzheimer’s Support Group Forming

On Friday, Nov. 11th  from 2 to 3:30 pm at the Community Center, there will be an introductory meeting for a Midcoast Maine Social Engagement Program for Dementia and Alzheimer’s Families, facilitated by Mark Pechenik, of the Maine Chapter of the Alzheimer’s Association.

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A diagnosis of Alzheimer’s or a related dementia is likely not the life path one envisions. The best way to face this disease is to continue to enjoy life. The Maine Chapter of the Alzheimer’s Association has been successful in helping patients with early stages of Dementia and Alzheimer’s design and carry out activities they can enjoy with others. These Social Engagement Programs offer a fun and comfortable way for people in the early stage of the disease to get out, get active and get connected with like individuals through a variety of community-based activities and social events.

Mark Pechenik, the Director of Outreach from the Maine Chapter of the Alzheimer’s Association will be speaking at the November meeting of People Helping People on Friday, November 11th from 2 to 3:30 pm at the Community Center in the Meadow Mall in Boothbay Harbor. This event is open to the public and families with individuals who are in the early stages of memory loss are encouraged to come.

Mark will explain how the Social Engagement program works and will teach us how to interact respectfully with people who are experiencing memory loss. He hopes to recruit interested patients and families from the Midcoast Region to start planning activities they’d enjoy doing. This is not intended primarily as a caregiver support group, but rather as a way for those experiencing early stage dementia to keep our brains active by designing programs and activities we will enjoy.

Activities might include going out to lunch together, going on an excursion to a local attraction, sharing memories, writing/telling your life story, sing alongs, walking or hiking outdoors, visiting museums, attending musical events, sharing a favorite hobby, playing brain-enhancement games, exercising together…. The possibilities are endless.

If you, or someone in your family, is beginning to experience memory issues, show signs of dementia, or has been diagnosed with early stages of Alzheimer’s, take this opportunity to take charge of your life and slow down the progression of memory loss and disability by becoming even more socially engaged and active. This program is being sponsored locally by the People Helping People Program of the Boothbay Region Health & Wellness Foundation.

 

“The Basics: Memory Loss, Dementia, and Alzheimer’s Disease,” Oct. 12 from 2 to 3:30 p.m.

On Wednesday, Oct. 12th, from 2 to 3:30 pm at St. Andrews Village, Mark Pechenik from the Maine Chapter of the Alzheimer’s Association will present a session entitled “Memory Loss, Dementia, and Alzheimer’s Disease.

The program will focus on the symptoms and effects of Alzheimer’s and other types of dementia, including how it affects the brain, as well as causes and risk factors and how people can find out if they have the condition.

More than 5 million Americans are living with Alzheimer’s, including about one in nine people 65 and older. Roughly one in three seniors will die with Alzheimer’s or another dementia, according to the Alzheimer’s Association.

Among the signs of Alzheimer’s are memory loss that disrupts daily life and goes beyond the normal age-related change of forgetting names or appointments but remembering them later.

According to a number of studies, people who had been diagnosed with Alzheimer’s felt a sense of empowerment and relief knowing what they were up against. They could also make plans and prepare for the future and no longer felt like a passive victim, according to Pechenik.

For example, said Pechenik, research underscores the benefits of social engagement for people who have Alzheimer’s, to help lessen the isolation and anxiety that is often associated with the disease.

He said the Alzheimer’s Organization is hoping to start a social engagement committee in the Midcoast and would like to work with people in the Boothbay area on that project.

For more information about the Alzheimer’s Organization, go to www.alz.org. This presentation is free and open to the republic but please RSVP by calling 633-0920.

Dementia Conversations

On Wednesday, Sept. 28th from 10:30 am to 12 pm, you’re invited to join a conversation about dementia and Alzheimer’s led by Mark Pechenik of the Maine Chapter of the Alzheimer’s Association. If a family member or close friend is beginning to experience Alzheimer’s or another dementia, this program will offer helpful tips to assist families and friends with difficult conversations related to dementia, including going to the doctor, deciding when to stop driving, and making legal and financial plans. Dementia Conversations will take place at the Community Center in the Meadow Mall in Boothbay Harbor.

Topics covered will include:

  • Tips for having difficult conversations around some of the most common issues that arise regarding Alzheimer’s or another dementia
  • The need to plan ahead and build a care team that communicates well in order to reduce the stress that can accompany a disease like Alzheimer’s
  • Connecting with helpful resources to enhance quality of life for everyone involved
  • Hearing from people who are dealing with similar issues.

This program is being sponsored by the Empowered Patients’ group of the Boothbay Region Health & Wellness Foundation.

How Yoga, Massage, Herbs Help Lyme Disease Sufferers

Join the Midcoast Lyme Disease Support & Education from 6 to 8 pm on Thursday, Sept. 15th at the Community Center. Heather Lee Casey, yoga instructor and massage therapist, will share how yoga, massage and healing herbs have such a great impact for healing and well being. Heather grew up traveling all over the country and has lived in Hawaii, Colorado, Alaska and Maine. She trained in Integral Yoga in Maui, HI in 2000 and studied Massage Therapy and Reiki at The Namaste Institute for Holistic Studies in Rockland, ME in 2007. Heather truly believes in the healing arts and is passionate about inspiring others. She is a yoga instructor as well as massage therapist at Crow Point Yoga in Boothbay Harbor.

Midcoast Lyme Disease Support & Education (MLDSE) is a nonprofit 501(c)3 organization that serves the needs of Midcoast Maine’s Lyme community through awareness, education, advocacy and free support resources.

For those who can not make the evening meetings, they also have a daytime Lyme support meeting that meets every month. Next daytime meeting is coming up on Monday, Sept. 19 at the Damariscotta Baptist Church from 1-3 p.m.

For more information about meetings or the organization, visit www.mldse.org or contact Paula Jackson Jones, 207-446-6447 or Angele Rice at 207-841-8757.

Preview of the BRHC Thurs. Aug. 25

If you’re wondering what the planned Boothbay Region Health Center will look like, the directors of Boothbay Region Health Care, Inc. invite you to join us for a movie and discussion at 2 P.M. on Thursday, August 25th at The Harbor Theatre in the Meadow Mall. We will view the first segment (approximately 30 minutes) of a film, Rx: The Quiet Revolution. This film segment features the Seaport Community Health Center in Belfast and Dr. David Loxterkamp, a dedicated primary care doctor who makes house calls, rides a moped, sings in a choral group, and leads a substance addiction group.

Doctors at the Seaport Community Health Center

Doctors at the Seaport Community Health Center in Belfast

The Seaport Community Health Center is an example of the kind of collaborative team of physicians, nurses, and allied health professionals working in partnership with patients, delivering comprehensive primary care and striving for good health that we plan for the Boothbay Region Health Center.

Dr. David Loxterkamp will be our special guest and following the film he will answer questions and explain how and why a modern community health center can provide great access including convenient office hours, walk-ins and house calls and help patients and the community achieve better health.

Dr. David Loxtercamp making a house call in Belfast, ME.

Dr. David Loxtercamp making a house call in Belfast, ME.

Boothbay Region Health Care directors will also answer questions and discuss details about their plans for the Boothbay Region Health Center and its phased launch.

“e-Patient Dave” deBronkart, who survived Stage 4 Kidney Cancer by doing his own research and partnering with his doctors, will introduce the film. Dave previously spoke to our community about “e-patients” being empowered, engaged, equipped and enabled. Dave is excited about the fact that Boothbay Region Health Center will be designed and governed by patients and that patients will be in the driver’s seat, partnering with their healthcare providers as their coaches.

"e-Patient Dave" deBronkart consulting with his doctor, Danny Sands, M.D.

“e-Patient Dave” deBronkart consulting with his doctor, Danny Sands, M.D.

Admission is free. Donations will be gratefully accepted.

BRHC Logo with Tagline CMYK

Screening of the film is possible thanks to the generosity of David Grubin Productions and WTTW Chicago, co-producers of the film. Thanks also to Jason Sheckley and The Harbor Theatre for giving us access to the theater and for all of his technical assistance in actually showing the film.

Do You Suspect You Have Lyme Disease?

You’re Not Alone!

Paula Jackson Jones and Angele Rice gave a riveting and informative “Tick-borne Disease Prevention Talk” at the Community Center in Boothbay Harbor on Saturday, July 16th, 2016. Although the focus of the talk was on PREVENTION of tick-borne diseases, the two founders of Midcoast Lyme Disease Support & Education told their personal stories – stories of years of misdiagnoses. This is all too common for patients in the Midcoast Maine region which houses the highest number of Lyme Disease cases in the entire state.

Although we’re at the epicenter of tick-borne diseases in this state, many primary care physicians and specialists are not able to correctly identify and properly diagnose and treat tick-borne diseases before they become chronic. And for good reasons! Paula Jackson Jones explained that diagnosis is very difficult because the symptoms are so varied and migratory in nature and no two Lyme patients look or act alike. Often times, it’s those symptoms that throw off medical providers and testing—testing which is not very accurate in the acute stage. So, patients suffering from tick-borne diseases, as Rice and Jackson Jones can attest, are often told that because they tested negative, or do not have a classic bullseye rash, that they do not have Lyme or are mis-diagnosed and treated for other conditions—which only exacerbates the infection and the severity of their symptoms. If left untreated, the bacteria can spread from the blood throughout the body entering tissues and organs, changing its appearance from spirochete to cyst to biofilm and thus, avoid detection and antibiotic treatment. Also to note, that adults and children present very differently with their symptoms and as such, treatment is also very different.

Researchers worldwide are hard at work on better diagnostic testing and treatment protocols that are more effective. There is no one size fits all approach because we as humans bring genetics and other health issues to the table.   In addition to Lyme disease, there are many other tick-borne diseases that ticks carry and eight have been identified here in Maine. Both Paula and Angele suffered from at least four additional co-infections which only complicated and exasperated their Lyme Disease.

Common Co-Infections of Lyme Disease in Midcoast Maine

Common Co-Infections of Lyme Disease in Midcoast Maine

Source: Midcoast Lyme Disease Support and Education Common Co-Infections of Lyme Disease in Midcoast Maine for more information about each of these diseases go to: http://midcoastlymediseasesupport.blogspot.com/p/co-infections.html

 

Four Common Co-Infections with Lyme Disease

Source: Midcoast Lyme Disease Support and Education Four Common Co-Infections with Lyme Disease, for more information see the Co-Infection section of the Midcoast Lymee Disease website.

Additional Resources

Here are some useful resources that may be helpful to anyone who has been feeling bad for a while and wants to rule out tick-borne diseases as a possible cause:

One of the common symptoms of tick-borne diseases: Your feet may hurt

One of the common symptoms of tick-borne diseases: Your feet may hurt. See 18 Silent Signs You Could have Lyme Disease.

  • Symptoms of Lyme Disease & Co-Infections—Dr. Richard Horowitz’s Checklist for a Visit to a Physician—Make note of whether you have any of these symptoms now, or have had them in the past. Click here to download or go to: http://www.cangetbetter.com/symptom-list
  • List of Illnesses You May have been Diagnosed with instead of Tick-borne diseases – Lyme Disease has been called the “Great Imitator” because so many of its symptoms mimic over 100+ other diseases. The commonality of symptoms can make diagnosis difficult and receiving the incorrect treatment can create debilitating and fatal outcomes. Some patients have been misdiagnosed with these diseases only to discover weeks, months even years later, that they actually have Lyme:
    • Multiple Sclerosis
    • Parkinson’s Disease
    • Fibromyalgia
    • Rheumatoid arthritis
    • Lupus
    • Chronic Fatigue Syndrome
    • Crohn’s disease
    • Meniere’s disease
    • Hepatitis
    • Carpal Tunnel Syndrome
    • Epstein-Barr virus infection
    • TMJ (jaw pain)
    • Gout
    • ALS (Lou Gehrig’s disease)
    • Psychological/psychiatric symptoms
    • ADHD (Attention Deficit Hyperactivity Disorder)
    • Alzheimer’s disease

As Paula and Angele both explained, if you’re not responding in a positive manner to your treatment, your diagnosis may not be correct. Your best bet is to make sure you meet with a healthcare provider who is well educated in identifying, diagnosing and treating Lyme and tick-borne disease.

Paula and Angele hold a Lyme Support group here in Boothbay Harbor at the Community Center on the 3rd Thursday of every month from 6-8pm year round. It is free and open to the public.

Their website www.midcoastlymediseasesupport.blogspot.com is full of lots of helpful information from in-depth research on Lyme and Co-Infections for adults and children to Tick Identification and Financial Aid to Support meetings, Local events and Educational conferences to Referrals to Lyme doctors to Maine Lyme Legislation and worldwide Lyme news and research. The recipients of (4) Educational Grants since 2014 for their steadfast work and commitment to this cause, these girls stay on the cutting edge of all things related to Lyme and tickborne diseases, advocating strongly on behalf of Maine’s people!

Midcoast Lyme Disease Support & Education is a nonprofit 501c3 organization that raises awareness, fosters education, advocates for change and provides local community support across Midcoast Maine. As a Maine-state partner of the national Lyme Disease Association, they are active members in Maine’s CDC Vector-borne Workgroup and Maine Lyme Legislation workgroup.

For more information you can visit their website or send them an email: midcoastlymediseasesupedu@gmail.com